Yesterday Rachel had a long day. It started around 5:45 am when she heard her daddy coughing and was unable to fall back asleep after. Then Lucky trotted up and down the stairs and her sisters were up and down the stairs while getting ready for school. Needless to say by the time we arrived at her orthopedic appointment at 10:30 she was already alittle crabby and did not nap in the car on the way to the appointment.After the orthopedic appointment Rachel was to be seen by Hanger to be fitted for braces.
Rachel was set up in the cast clinic. We forgot paci but the cast tech got her a new one and two different music boxes before she started removing Rachel's casts. We were calling it "imposter paci" as it was not the round jellybean shaped one she was use to. She kept removing paci from her mouth and trying to tell me "it's not the right one". (Our goal was to wean off of paci after she recovered from this surgery-perfect timing). Rachel's casts were removed uneventfully- she only cried at the beginning when we tried to get her to lay down. The resident MD came and inspected her healing incisions and had removed her steri strips. Rachel's skin on her legs looked like dried out leather and was wrinkling in places. Her ortho MD then came and seen Rachel. He was not as happy with the progression of her incisions healing. He decided that he wanted to recast her for 10 more days to avoid any chance of breaking open the incisions.Heartbroken about the recasting we were sent downstairs to Hanger's office for brace fitting after the cast tech covered her incisions.
While in the waiting room at Hanger a little boy (I am guessing around 3 years old) came down the hallway with a yellow walker. He was struggling a bit and mainly tip toe walking. Rachel and I cheered him on as he came closer and told him he was doing a great job and that we were looking forward to when Rachel would get her first walker. The father had looked weary as he was following behind his son in the hallway pushing another child in a stroller. When the father registered what we were saying to his son his expression of weariness turned to pride. Keep up the good work little man!
We had a great time at Hanger (minus each time Rachel looked at the cast saw and cried-this is why I can not use a blender in the same room as her- she associates the sounds) Rachel was fitted for bilateral AFO's. The orthotist had been with Hanger forever as his office staff described but you could tell this was someone whose heart was in their job and truely enjoyed helping children. The first thing he did was wrap Rachel's ankles with 3 inch wide plastic wrap over the dressings for her incisions. Then he placed stockinette over that. On the stockinette he marked a few boney landmarks for fitting purposes. Next Rachel had a leather strip placed on the front center of her foot and shin. He casted about 3/4 of a roll of fiberglass over the leather strip to form the mold for her AFO's. Rachel's ortho MD had ordered that her feet be kept in a 10 degree dorsiflexion. Rachel was not as impressed when he kept her in the dorsiflexion for the mold. The fiberglass was then removed using a cast saw along the leather strip. The purpose of the leather strip is to prevent cast saw burns from the thin layer of fiberglass. The cast saw uses vibration to cut through fiberglass and plaster- if held in one place to long it will cause a burn but does not cut the skin. After the fiberglass mold was removed he stapled the cut edges of the fiberglass together. This was done for both feet. We were able to pick out a pattern for Rachel's AFO's. We chose a light purple with butterflies on it. Symbolic of the butterfly wings helping Rachel fly. It will take about 2 weeks for Rachel's AFO's to be done. Her ortho MD would like them worn everyday while she is awake. The orthotist then requested that we bring in 2-3 different pairs of shoes when her AFO's are ready. He told us to keep the tags on in case we need to return them. I then told him that Rachel has been in casts for so long that we do not know what her shoe size is and that she was going to be recasted upstairs He measured Rachel's feet. They are 4 inches long by 2 inches wide. He recommended to start with a shoe that measures 4.5 inches long after the insole is removed and then possibly the next size up. I heart this orthotist- he was great and he made me think of my father as they were about the same age.
On the way back upstairs to the ortho clinic I had a thought. Why couldn't Rachel just be splinted on the bottom with ace wraps keeping the splints in place? I am a nurse so I could do any wound and skin care that was needed and she could get a bath. Once back in the ortho clinic I requested to the cast tech to ask Rachel's ortho MD if we could do this instead. He came back and talked with me. I proposed my request and re-explained that I was a nurse and could do any skin/wound care and that Rachel really needed to be bathed. I was so delighted when he agreed! They still had Rachel's casts that were removed earlier. The cast techs then removed the old padding from the casts, repadded them and covered them with stockinette. They did this with both the tops and bottoms of the casts. We were going to use the bottoms unless we noticed that Rachel was trying to move to far out of position. If this were the case then the tops could be placed on and using ace wraps clam shelled together. She no longer needs to be nonweight bearing also- yeah!This was getting harder the last few days to keep her from standing.
Rachel had been very crabby after her appointment with Hanger ended up until she went to bed. I had medicated her with infant's tylenol as I think part of the crabbies were from discomfort to her legs and feet combined with lack of sleep.
Bottom of casts held in place with ace wraps.
When Rachel went to bed she threw imposter paci out of her bed. She really did not like imposter paci and I am thinking the imposter is the way to go on weaning her off.