Busy little bumble bee!
Sunday, October 27, 2013
Rachel went trick or treating today with her sisters at the nursing home I work at. I was so proud of her. She used her walker the entire time and was not shy at all. I was worried that she was going to be shy and make me carry her. She definitely proved me wrong.
Wednesday, October 23, 2013
Rachel playing with her cousin Max's trucks and Ants in the Pants.
Below is a link to an interview another spina bifida mom Kellie did with her son Adam. He just turned 2 and is a total spina bifida rock star.
Pirate Ruth and her pirate "food"! Ruth also is a spina bifida rock star!
Pirate Ruth and her gang of pirate sisters!Love it!
Here is Ruth rocking out the cover of Insights into Spina Bifida magazine!
Saturday, October 19, 2013
Wednesday, October 16, 2013
This has been a busy week for Rachel and I. A busy but happy week. On our fetal surgery for spina bifida facebook group we also gave away 2 super hero masks.Our little spina bifida kiddos are true super heroes and defy the odds. The masks are also available to purchase at the Twice Born Boutique in infant, toddler and child sizes.
Here is Dryden's super hero mask.
Here is Miah's super hero mask.
We also made a super hero mask for Darb. She is Rachel's runner from the I Run For organization. She has been working hard in Rachel's honor. Go Darb Go!
Here is Darb's super hero mask!
Here is Carter with his sister and the sword and eye patch from the pirate play set give away. They are both so cute!Carter is going to need to learn how to use that sword to chase the boys away from his sister!
Rachel giving her stuffed dog a kiss. She is so sweet!
Wednesday, October 9, 2013
Rachel is trying to get her "sea legs" under her. She has been being brave this week and letting go of holding onto things while she is standing. She looks so hesitant but proud at the same time. She stays steady, then those "sea legs" start to sway and down she goes. I love how determined she is. We have caught her walking along the outside of her parallel bars with just one hand lightly skimming the top of the bar. I wish I would have gotten video of the that. With her "sea legs" and love for Jake and the Neverland Pirates we made a girl and boy pirate playset. The pirate playset was then put into a drawing amongst our Fetal Surgery for Spina Bifida facebook group. We are excited to send them out in the mail tomorrow to Alexis and Carter.
Rachel has an improved pancake with the maple syrup on it this time-lol!
Wednesday, October 2, 2013
Rachel and I getting ready to go down the slide together. I am not sure which one of us has more fun on the slides. Yes- I admit we were at McDonald's again. Truthfully she gets an amazing workout crawling through the tunnels and she is so motivated to go while we are there. (and no I still have not had any french fries yet this year) We were blessed to have met a nice young man (I am guessing 3-4 years old) that would take Rachel's hand and try to help her up over the tough spots. He never questioned why she needed help- he could just see that she did and he stepped up to help her without being asked to. What a little gentleman! I stopped to compliment this young man to his mom and grandma. It turns out they have a member of their family affected by spina bifida too. Trey (I hope I have the spelling correct) has spina bifida starting at the L2 level of his spine. His grandma is very proud of him and told me wonderful and inspiring things about Trey. He maybe surprised to know that this was the second person to have mentioned him to our family. My sister-in-law told me about a wonderful athlete from West Bend High School with spina bifida when we had just found out Rachel had spina bifida. I have tears in my eyes as I write this- I hope one day he will know how he inspired my family and gave us hope.
http://gracesfavours.blogspot.co.uk/2013/09/how-to-make-diy-pirate-sword-tutorial.html I love this pattern! There are a lot of pictures that help make the project go smoothly.
Rachel walking around at Breanne's track meet. She has started cheering. "Go Girls Go!"
She got her walker stuck in a tree root.
Future nurse or doctor? She loves to use my stethoscope, blood pressure cuff and thermometer. I will have to teach her how to use the pulse ox and she will be ready to go to work.
Tuesday, September 24, 2013
Life seems to have pushed the fast forward button this week. I am excited about this being our 100th blog post. Rachel continues to be a wonderful blessing in our lives and I can not imagine life without her. I would not change anything about her including our journey with spina bifida. That doesn't however mean that somedays I didn't wish spina bifida would take a hike off a cliff and never effect anyone again. Little by little we hike farther from the edge and push the challenges of spina bifida further away. What during pregnancy seemed like the end of the world and the end of the childhood dreams we had for Rachel is so far from the reality that we have with her. Rachel has knitted our family closer together. It is every mom's dream to watch her children play, grow and love together and we are blessed to have this however bumpy the path may be at times.
Rachel cheering Breanne on with Alicia.
Breanne doing the high jump.
Felt egg from tutorial
First attempt at a pancake- I realized I forgot to add the maple syrup. I usually skip maple syrup on my pancakes at home so I didn't even think about it until after it was sown together.
I also stopped on the way home from our bike ride at McDonald's.I wanted to see how Rachel would do on the indoor play equipment. She ate her hamburger and watched the other kids playing. She observed the slide and then told anyone that walked by that there was a slide.
Rachel did really well in the play equipment. She needed a little help going up some parts but was able to crawl through the tunnels without any problems. We had another little girl as our tour guide through the play equipment. It was cute! (and yes I made it through all of the tunnels too!) Rachel really liked going down the slides with me.
Rachel has been taking better steps with her twister cables. She has been frequently pushing her cart through the house and outside. She has also been asking to stay "up go" and wanting to hold our hands to walk instead of crawling. I like this.
Sunday, September 15, 2013
A picture of sweetness
Rachel continued to work hard with her twister cables this past week. I missed out on photo opportunities of her working hard. I flew down to Tampa on Tuesday and returned back home late yesterday.
While in Tampa I attended an accredited class for my 30 hour IV certification. Basically this means a semester of IV training scrunched into 2 days. Needless to say I was nervous about how I would do with the time restraint. I passed my certification test with a 98%. Hooray! We had practice arms that we inserted IV's in. The practice arms looked pretty creepy but the great thing about them is they would bleed (red food coloring and water).
Our practice arm even had fingerprints!I think it would make a good Halloween decoration.
While I was in Tampa I was able to stay with my friend Dawn and her family. Our family use to be neighbors with Dawn when we lived in Tampa several years ago. Dawn is one of the strongest women I know. I find her amazing. She is paralyzed from the waist down. During my time there we got to go swimming together for the first time.
Dawn was like a ballerina in the water.
One of the other things we did was visit the Clearwater Marine Aquarium. The aquarium is the home of Winter the dolphin. If you are unfamiliar with Winter - the movie A Dolphin's Tale is the story about her life. I confess I have not seen the movie yet but am hoping to this week. The movie was filmed at the Clearwater Marine Aquarium. They are closing the aquarium temporarily starting next month to begin filming A Dolphin's Tale 2.
Winter was a baby dolphin that was found entangled in the ropes from a crab trap. She was found by a fisherman that cut her free and called a rescue team. Winter lost her entire tail and 2 of her vertebrae as a result of the injuries sustained from the ropes. Winter was cared for and began a long road of continuous rehab.Dolphins swim in a up and down motion- Winter without her tail swims in a side to side motion. Hanger Prosthetics worked with marine veterinarians and trainers to help create a prosthetic tail for Winter.
One of Winter's prosthetic tails