I recently started Rachel a channel on YouTube. It is called Rachel's Fetal Surgery for Spina Bifida Stories. I am in the process of constructing her channel. I will add some links soon. We would also love to add videos of other spina bifida kids to her channel. We are looking for both kids that have and have not had fetal surgery. Our hope is that by reaching out we may inspire others and give hope to parents whom have been given the diagnosis of spina bifida for their child.
For those who would like to be featured on Rachel's YouTube channel- please email at firstname.lastname@example.org Please include your child's name, age in the video, lesion level, if they had fetal surgery and any links to your own blogs or facebook pages that we can add to the video description. Thank you for sharing!